Tourettes is something that is very weird and tricky. One day I can be fine and the next day could be a complete ticing mess. One day I have my normal tics and the next I add 15 more. It is super weird.
No one knows what truly sets it off. They do believe that it is genetic though. Which means that if you have a child and you have tourettes, there is at least a 50% chance your child will have tourettes.
Did you know that 1 in 100 people have some sort of tic disorder? That means it could be tourettes, motor tics, or vocal tics. And only 10% of people have coprolalia, which is where a tic involves curse words.
That is the stereotypical version of tourettes. It is not always cursing and waving your arms and people do not understand it. People also do not understand that if you doing something that resembles and tic and its a tic that person has, there is a good chance that that person is going to do that tic. That happened to me last night at work. Most annoying thing ever.
People don’t understand that a lot of things can set off tics. It doesn’t have to be just one thing. It could be a word, a phrase, a movement, a sound. So much can set them off besides that part that is in the brain.
I am someone who constantly feels like they are alone because of my tourettes. In my community, there are little to none people that I have noticed with tourettes or tics in general. That is really hard for me. It’s hard feeling like you are alone in a struggle. Yes I know there are other people who battle tourettes but when you really can’t find anyone, it makes it tricky.
One thing that people need to understand is that tourettes is 100% uncontrollable. The movements and sounds I make that don’t seem normal are uncontrollable. I have absolutely no control over them and its hard. Its hard having you body do so many things that are uncontrollable. They are physically and emotionally draining.
For someone without TS it is super easy to do everyday tasks but with someone with it, it is difficult. I can start ticing at nearly any second and that makes it nearly impossible. I can be fine one moment and not the next. And thats how it goes with a lot of people with tourettes syndrome.
Most of the time I can not stand my tourettes, and that is easily understandable. My tics are annoying, unpleasant, and can be painful. But sometimes, just sometimes, I am very thankful for it because it makes me different and gives me the want to be a voice for others battling with it.
Until Next Time,
Madison Rae <3
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